Juvenile Dermatomyositis lived experiences

Massey University seeks parents of children aged 5-12 with Juvenile Dermatomyositis in New Zealand, Australia, and the UK for a study on treatment experiences. The research aims to identify areas needing additional support.

Eligibility:
– Parent of a child 5-12 years old with JDM
– Residing in NZ, Australia, or UK
– Over 18 years old
– Access to strong internet connection
– English-speaking

Participation involves completing a 20-minute online survey about healthcare experiences, with entrants eligible for a draw to win a $20 gift card as a thank you. Additionally, select participants may take part in an optional 1-hour interview via Zoom or phone, for which they will receive a $40 voucher.

The study includes a question for children to answer through writing or drawing.

Click on the below to learn more and apply.

Exploring the experience of children and their parents undergoing long term treatment for juvenile dermatomyositis in the public health care system.

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